Saturday, August 22, 2009

Lil Kiwi Medical Wonder or Medical Mystery

So, on Wednesday we headed into town to see a new specialist. Our PCM (primary care manager ie. Military doctor) couldn't decide if Lil Kiwi needed to see an Orthopedic or a Genetics Doctor so she left it up to the Orthopedic Doctor (we will call her Dr. D) to decide. How nice right.. Can you feel the love...
Anyway....Here is how the day went...
  • Leave at 8:30am and get to the Hospital around 10:00...
  • Problem with insurance and the hospital
  • Several phone calls and a lot of waiting but get it taken care
  • Finally get to see Dr. D at about noon...
  • She looked and listened..
  • Then it was off to take some X-Rays...
  • Return and have X-rays looked at..
  • Hear "Aaaaa" from the Dr. D (this is never a good thing)
  • Talk about the results (the good ones and the bad ones)
  • Confirm that more tests are needed (including CT scan)
  • Confirm that a Genetics visit is needed
  • Leave hospital around 3:00pm and head home

What are the results from the X-rays? Well, we now know that I'm not crazy and there is something wrong with Lil Kiwi's body and skeletal system... The X-rays showed something that the Orthopedic Specialist has never SEEN or HEARD of before... (deep breath to keep head from swimming)

Yes, you read that correctly.... Lil Kiwi has a medical issue that hasn't been seen by this hospital which specializes in this area... Dr. D isn't sure exactly how to proceed minus more tests and seeing where to go from there... I was going to try and take pictures of the x-rays but honestly I don't have the heart to look at them right now....

I've already got the appointment with the "insurance approved" Genetics Doctor for the end of September (that being the soonest they can see us) ... My PCM still hasn't called me back after all my calls but then again she never does... However, Monday I have an appointment for Wee Man with her so she will get an earful from me...

Oh and Thursday we had Lil Kiwi's VCUG and ultrasound done... It was the first time we had been to this Hospital and it was actually a very nice visit... While in the waiting room Lil Kiwi had almost everyones attention and when we were called back half the waiting room was waving and saying goodbye to her... She has that aura about her...

Thursday was also the first time I have ever gotten a "shocked" look about Lil Kiwi's physical issues... Just after the VCUG test we were getting her redressed and the towel that was around her fell down... I heard a "gasp" and looked over to one of the nurses that had been helping... She stood there with her mouth open and fixed eyes on Lil Kiwi... I smiled and said "Yes Lil Kiwi has a few other issues as well... her tushie is just one of them"... She blinked a few times and then nodded and walked back to the lab area...

Unofficially, the results are that the surgery worked and no more reflux (YEAH!) .... However, there is still another problem (maybe) ... We don't find out officially until her recheck appointment in September with Dr. V... Until then we wait...


  1. I've just read through your posts about lil kiwi, such a hard thing to go through. kind thoughts . . .

  2. First off, let's get that nurse some better training.
    Secondly.....End of September? this Genetics doctor military?
    And isn't that just like the contact on results...we have to go looking.....not to mention the long waits (lost days) always waiting and how great they are about losing records and such? I hope you do give your primary care giver an ear full. But most of all, I hope the Genetics Doctor has promising news for you all.

    And I hope you and yours have had a beautiful weekend

  3. I'm sorry to hear that you guys are going through all of this. It sounds like one long doctor's visit and I am sure you're all exhausted. I will keep sending healthy thoughts for Lil Kiwi out into the universe! Please let me know if you ever need to talk. I know, that must sound weird, but I do mean it. {Hugs}

  4. I'm a relatively short term reader, so I don't know all of the history of Lil Kiwi, but she's a beautiful little girl and I hope you get some answers soon. Hugs to you.


  5. What you are going through must be difficult and frustrating. I just couldn't imagine. I hope you get the answers you are looking for at her next appointment in September. In the meantime, take care and I will keep Lil Kiwi and your family in my thoughts and prayers.

  6. I am so sorry that you're family is going through all of this. Lil Kiwi is such an adorable little girl. I hope that all turns out well for you.

  7. Wednesday sounds like a nightmare. I'm glad Thursday was (mostly) a better experience.

    Was your PCM at all apologetic for not getting back to you on Monday?